What to Do After a
Getting an official diagnosis of a disability or special needs for your child can be stressful. Even if it doesn’t come as a complete surprise to you, it is a lot to process. It’s important to remember you are not alone, and this is not the end, it is the beginning. There is help out there, and here are some things to think about after you get the diagnosis.
- Ask Follow Up Questions: Whether it’s to the doctors you work with or a case worker you get assigned to, ask lots of questions. Ask about books or resources that might teach you more about your child’s diagnosis. Ask if any follow-up tests are needed.
- Identify Recommended Interventions: In the early stages, it’s important to know what types of therapy your child needs. He or she might need occupational therapy (OT), speech, behavioral, applied behavioral analysis (ABA), or a mix of things. Understanding what’s needed in that area will help you seek out the assistance you need.
- Talk To Your Insurance Company: Once you know what is required, call your insurance provider and/or talk to your company’s HR team. It’s helpful to find out what might be covered and how. If you have a network plan, it will be important to know that you are searching therapists that are in network. You’ll also want to find out if services must meet a deductible or if they have co-pays.
- Apply for Financial Support Programs: There are numerous programs at a federal, state and local level that are designed to help children with special needs. The application processes can often take some time, so it’s good to do this early and find out what you qualify for.
- Find the Right Providers: With the groundwork set up, the next big step is to find the right therapists for your child. Find out who is and isn’t covered by your insurance, call and ask questions and set up interviews. Make sure you find the right fit for your child.
- Advocate for Your Child: Once therapy is going and the initial steps are taken care of, always make sure to keep in close communications with the therapists and providers. Make sure you understand what’s working and what’s not, and don’t be afraid to speak up if you feel something isn’t right.
- Take Care of Yourself: This can all be stressful and difficult, and it’s easy to lose sight of your own well being when you are so focused on caring for your child. Remember, you need to care for yourself to be at your best to help your child. Seek out support groups, visit a personal or family therapist, and find moments of self care.
I know this seems like a lot. It is an emotional time and finding your way through all of it can feel like walking blindfolded in a forest. This is where Mountain Summit can help. With firsthand experience, I can help direct you where you need to go, work with you to find the right providers and assist in your efforts to find financial support. You’ve got this, and I’m here to help you find the way.
We can help you navigate:
As the parent of an autisic son, I understand what it is like to feel overwhelmed, alone and lost after receiving a special needs diagnosis. It’s an emotional and logistically difficult path and families shouldn’t have to go it alone. I’m here to make your life easier and to give you the benefit of what I’ve learned along the way.
Special Needs / Disabilities
When you find out your child has a disability, it can be hard to know where to start. You’re faced with tough decisions, like choosing a provider and figuring out how to pay for everything. That’s where I come in. I want to help make your life just a little easier by doing the research for you. I can help you find the right providers and point you to state, federal and private programs that may provide additional support.
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